One of the major problems I've had recently is "what to do?"
I have no clue what to do about much of my life's goals, plans, dreams - I've always had some sort of plan, so this floundering is new. And coupled with the anger, sadness, and frustration of losing my sons, it's debilitating. I'm going through the motions, but I'm not really here.
You see this is the thing about something like IC - it slams into your life and makes you question everything you thought you knew. And then you question all that you may have kind of known about what your body was doing when it decided to betray you: I can't help reliving the extra mucus, the slight pressure, the "gassy" pain in my back... Put all together, I should have gone to the doctor long before my check-up. But nothing I read pointed me that way. So then I start blaming everybody & everything (for not giving me the whole picture), including myself (for not being able to put it all together in time to save them). It's a vicious cycle. I'm trying to break free, but I guess it will take a while.
Anywhoo - don't forget to take/share MY SURVEY (link disabled)!